Letter to Eli, 23 Months

Dear Eli,

What a month this has been!

In mid-December you were given a developmental screening. We were expecting it to show a speech delay but were shocked by the degree of delay they say you have. The good thing is that it qualifies you for some free services in addition to the therapy that the insurance has approved. We have full confidence you will do just fine in the speech department given time, and the extra help is certainly welcome. Already you are showing improvement. At the time of the screening you weren’t saying much verbally other than “Mama” (when crying) and a couple of words you would repeat if asked to. Now you are saying “Mama” all the time and have added to that more, sopa, agua, dog, tea, Dada, ball, go, apple, Elmo, in, ‘Acki (Aunt Jacki) and a couple others that I just can’t think of right now. As of yet you’ve only had 2 speech therapy sessions, so I think a big part of it is just that you are becoming more ready to speak.

What we didn’t realize before the screening was that some of your behaviors aren’t just you being Eli, but rather indicate a Sensory Processing Disorder. For you it is mainly the vestibular system that is affected, although there are other non-motion things going on with you as well.

This actually helps to explain a lot… especially about why you are ALWAYS moving. As it has been explained to me you don’t have a sense of where your body is located in space unless you are receiving the stimulation of movement. Ironically, for your body to feel at rest it has to be moving. It explains why when you were a little baby you couldn’t sleep unless you were in the swing, and later why you would start rolling across the bed like a little tumbleweed waking up on your hands and knees crying 3 or 4 times every night. (We are thankful you don’t do that anymore.)

You beg to take a (cold) bath at least a couple of times a day. Once is usually the limit. I don't look forward to the day when you make the connection between getting dirty and bathing. I shudder to think of what you will do then. 🙂

Other ways you are affected are that you only want to be bathed in cold water. We’ve slowly gotten you to the point where you will tolerate it being luke warm. You also aren’t tolerating a lot of different textures of food, and often end up coughing when you try to drink fluids or when eating small grains. The swallow study you had done this past month showed that your esophagus works fine, so the problem has been attributed to the Sensory Processing Disorder.  In addition to the group and individual speech therapy you’ll be receiving you will also have group and individual occupational therapy. We are all of the sudden very busy, but I’m so glad that there is help available for you.

Adding the final touches to Mama's crudely drawn sidewalk pig.

You continue to love music, instruments and performances. You love to hear the sound of a crowd cheering and applauding. Sometimes when you are in a fussy mood it helps for us to turn on a game show in the background because when you here the applause you usually can’t help yourself but to cheer and applaud along.

You have had an on-going love affair with your daddy’s old guitar for many months now. The headstock is now completely shattered from all of the times you have dropped it on the floor. Let’s face it, it’s a lot of guitar for a little guy. It has been held together with duct tape, but the few remaining strings are becoming less and less strum-able.

Thankfully my Aunt Sylvia and Uncle Dave sent you a new, toddler-sized guitar. The day it arrived you spent much of the day carrying it around in a big bear hug when you weren’t strumming it. I caught you kissing it a time or two as well. Unfortunately I haven’t been able to get a non-blurry picture of you with it yet.

You also are drawn to the microphones and drum equipment at church. It is so cute to see you in your element happily exploring these things after service. Less cute is our inevitably loud exit as no amount of time with your beloved instruments is ever enough. Your howls and shrieks of frustrated disappointment are most likely heard at least a block away.

Here you are pointing inside your cup, exclaiming delightedly "TEA!"

Your love of tea continues to grow, much to my delight. You like to play tea party, in which you serve me pretend cup after cup of hot(!) tea, poured with all sorts of burbling water sound effects. In return, I am expected to share any cup of my (real) tea with you. I pour a little in a small cup and you impatiently wait for it to cool. This practice has led to a great improvement in your ability to drink from a cup without choking. The tea we have at home is all caffeine free but when we are out I like to get an occasional soy chai latte. I order it weak and you enjoy drinking the cold last half inch in the bottom of the cup so much that I figure whatever small amount of caffeine there is won’t kill you. The looks we get from other people are really something though, as it seems like I am giving my toddler coffee! This appearance is then only underscored by your normal extremely active behavior! (For the record I’ve never noticed any change in behavior after you’ve enjoyed the last of my tea.)

Riding on the firetruck at the park.

There are so many things you enjoy doing these days, but going to Barnes & Noble takes the cake! Now if we even drive on the street that glorious store is located on you begin frantically signing “book” long before the store is even in sight. At night your daddy and I like to wind down by watching a bit of Masterpiece Theater. He always mutes the B&N commercial at the beginning to prevent you from getting the idea that you have to go there RIGHT NOW. They have now removed the Lego table, but there are so many other things you love to do there I’m not sure you have really even noticed.

You had to test drive EVERY nook! You were so careful to replace each one carefully on the display holder without me even having to say anything. I was amazed (and hovered just the same.).

You usually make a bee line for the Music and DVD section immediately upon entering the store, (although today you were momentarily distracted by those wonderful nooks.) As soon as it is in sight you break into a canter, chirping “Elmo!”, Elmo!” Once inside the music section you gravitate to the DVDs looking for the Baby Einstein and Sesame Street displays.

These DVDs are then taken one by one to the scanner to be scanned. This is very serious work.

With each satisfying beep you abandon  that DVD and look for another to scan.You are actually pretty good about returning them to the place you found them, but you sometimes need a little encouragement. The sales people who work in that section  now recognize you and even seem to enjoy your visits.

Leave it to you to find the guitar!

Then it’s off to the children’s section, which, after all, is where Elmo lives.

You especially like the books in the vehicle area that have all sorts of sound effect buttons on them.

At some point it is time to go to the cafe, and as Daddy is usually your shadow at Barnes & Noble, you find Mama there with a cup of delicious tea and hopefully a coconut macaroon! In fact, the best way to get you to leave the children’s section sans tantrum is to suggest, “Eli, do you want some tea?”

Mmmmm... TEA!

Best of all, Barnes & Noble is a place where we occasionally meet up with people who love you!

Yes, Barnes & Nobel is truly your idea of heaven on earth!

I can’t wait to see what this last month of your second year will bring. I love you so very, very very much!

Mama

Advertisements

7 Comments

  1. February 6, 2012 at 6:28 pm

    Beautiful words. Beautiful mama’s heart.

  2. Inder said,

    February 7, 2012 at 8:44 am

    Aw. Hi, Eli! He is just so precious! I’m looking forward to hearing how everything goes with the various therapies. He sounds a lot like Joe – Joe also started talking around two, right after a really hard to take assessment, but before speech therapy officially began. The speech therapist met him and was like, “He repeats all kinds of sounds! And he says a lot of words! I thought, based on his chart, that he mostly used sign language?” And we were like, “Seriously, as of last week, that was true!” I don’t know if she believed us, so sudden and marked was his improvement. You can do it, Eli! Talking is fun!

    P.S. The tea is really cute. And I don’t think there’s enough caffeine in a dilute chai latte to do ANYTHING. If I saw him drinking, I’d be chuckling at the cuteness, not worried about the contents of the cup.

    • February 8, 2012 at 3:43 pm

      Actually, reading about Joe’s whole progress has helped me to calm down a lot about all of this. Knowing that Joe was in such a similar place and is now doing so very well has been so helpful for me. Thank you.

      The tea thing is the Eli-thing that tickles me the most right now… and there is plenty of competition in the realm of daily Eli-cuteness. I keep thinking with each stage how much I’m going to miss it when he grows a bit more, but then I find the next stage and the unfolding of his personality to not be something I would ever want to trade to be able to go back.

  3. randalin said,

    February 8, 2012 at 8:45 am

    Seeing pictures of this little guy always makes me smile! I am so happy that the speech therapy is helping so much. That is really incredible progress is such a short period of time.

    I love the idea of putting a game show on! Kale loves to hear clapping and cheering, but I never thought to do this for him!

    • February 8, 2012 at 3:36 pm

      Thanks, Randalin. Wouldn’t it be fun if Eli and Kale could get together? I think they would really hit it off. Eli has been fascinated with Jeopardy just about since birth. I think he recognized the sounds from his time in the womb. When we were busy and left the t.v. on after one episode we found how he reacted to the applause as there is a lot of it in Wheel of Fortune. (I gotta admit I feel pretty lame admitting to putting on this much t.v. for my little guy though.)

  4. February 9, 2012 at 11:18 pm

    […] (On a side note, there aren’t even any seasonal allergies. He has Vasomotor Rhinitis which has nothing to do with allergies at all. For at least a year now I thought I’d totally given Eli the short end of the sticks in the genetic department as far as allergies are concerned. So glad he doesn’t take after good ol’ mom in this aspect. We’ll always have the tea!) […]


Leave a Reply

Fill in your details below or click an icon to log in:

WordPress.com Logo

You are commenting using your WordPress.com account. Log Out / Change )

Twitter picture

You are commenting using your Twitter account. Log Out / Change )

Facebook photo

You are commenting using your Facebook account. Log Out / Change )

Google+ photo

You are commenting using your Google+ account. Log Out / Change )

Connecting to %s

%d bloggers like this: