Letter to Eli, 24 Months

Dear Eli,

24 months- otherwise known as 2 years old! Only 2 short (depending upon how you look at them) years, and now I can’t imagine my life without you. This past month has been quite an eventful one for you.

Playing in the dirt is still a favorite.

Playing in the dirt is still a favorite activity.

You have started going to Speech and Occupational Therapy 4 days a week. It is really keeping us busy but we are seeing so much improvement already. One of the therapists has commented that you are such a fun child to work with because every time she sees you you’re saying new things. You are finally repeating words that you hear with little or no cajoling. Everyday I’m hearing you say words you have never said before. This is true in Spanish as well as English. Your current Spanish vocabulary includes agua, mas, arroz, hola, sopa and most likely a few more I can’t think of just now. I couldn’t begin to list the words you are saying in English anymore. One we are hearing a lot now is “Ergo” which means either you want to be cuddled in it or that you have had it with being inside and it is time to go. If it is the latter and I don’t take the hint you then bring me my shoes just to drive the point home.

Today at your group program I couldn’t get over how far you have come in just a few short weeks. You sat through both opening and closing circle times with just a bit of encouragement and redirection and actually participated. Your smile when everyone sang the Happy Birthday song to you was priceless. You also did quite well with participating in the various little classes as well… whenever you weren’t trying to scale Mama that is. It seems we’ve hit a new round of strong separation anxiety again and you would like to spend much more time in Mama or Dada’s arms than is possible at this point. I think my favorite part of the day was when you kept making your little plastic dogs kiss each other rather than matching them with the picture in the book like you were supposed to, not because you couldn’t but because matching is an inferior activity to kissing in your estimation. That’s my Eli… a lover and a rebel all wrapped up into one!

Trying your hand at eating with chopsticks.

You have always been sensitive and tender hearted, but this past month you have developed empathy. It used to be it didn’t phase you if you accidentally clobbered someone (usually me) while playing. You just didn’t get it. But now, if you think you have hurt someone else you are still sobbing about it long after the other child is done crying and has gone back to play. I never like to see you cry, but I do love seeing that you are becoming such a caring person. I was telling my cousin about this on the phone while following you around the toy section of the store. (Sherie always wants to know what is new with you.) I didn’t realize you were listening in so closely on my end of the conversation. Unfortunately all you understood was that I was telling somebody on the phone that you had hurt someone else. You immediately started shrieking and sobbing. It took you at least 10 minutes to stop crying. I really have to be careful about what I talk about around you now!

Working on your new puzzle with Cori.

You now LOVE to do puzzles, and you are pretty quick at it. One of the things you like about going to therapy is that there are many different puzzles. Since we started going you have gotten so much better at turn taking with the other children there as you put together puzzles together. You were thrilled to receive some new puzzles for your birthday.

You are beginning to show an interest in dressing and undressing yourself now. We’ve been working on being able to take your shoes off and you almost have it down. You take off your own socks. The other day you wanted to put on your own pants and ended up going to get your Daddy for a little help.

Having a jam session with Daddy.

You are liking your potty chair as well. I’ve been wondering about when the right time to start the potty training process with you. I think you have been listening to some of the conversations I’ve had with others about it. For about a week your Dad and I had been confused about a new sign you were using that we didn’t recognize. It turns out you were signing potty! Now you sign potty and we get out your chair. You will sit there for up to 20 minutes at a time if I stay with you and you have toys. When the anticipated action occurs you are so pleased and we make a big deal about flushing it. We are not doing any serious potty training at this point, but you are showing an interest which is an important first step.

You have a certain way of exclaiming that I just can’t figure out how to put into print as it it all in the tone of voice. You use it especially whenever you encounter something that is wrong or somehow inappropriate. Like the bulb syringe being on Daddy’s desk, or the door to Daddy’s office being open in the first place. (After all you know as well as I do that a certain wild toddler is apt to come rampaging through!) Or while at the store with your father and overhearing a woman say to her little girl, “Let’s go see Daddy.” Couldn’t they see that your Daddy was standing RIGHT THERE?

Enjoying a hug from Grandpa Jim.

In the couple of weeks that passed between your 2 birthday dinners (to be able to celebrate with out of town family, I’m pretty sure you now think a birthday is a month long affair) you learned how to blow out your own candle.

Here you can see your Daddy blowing it out for you.

Two weeks later you surprised everyone and had it blown out from across the table before we even finished singing.

So Aunt Jacki lit it again…

so we could catch the moment with the camera. And then we did it yet again, just for fun. :-)

You REALLY enjoyed the “cupcake” not minding a bit that it was actually a wild blueberry flax muffin with some frosting on it. Turns out the vegan bakery was closed that day and I didn’t have time to bake. I wonder if you will always be this easy to please. Somehow I doubt it, but if you take after your father, you just may be.

I cannot imagine feeling any more blessed to be a mother than I do with you in my life. I love you so very, very, very much!

Mama

An Update on Eli

Today we took Eli to have the swallow study done. Thank you to all who prayed for Eli and this procedure. A major answer to prayer was that we were both not only allowed to stay with Eli during the procedure, but we were encouraged to. I had been so nervous that they would expect us both to step out of the room, and that we would need to try to insist otherwise.

Since his developmental screening last month Eli’s oral vocabulary has expanded to 10 words. One of those words is “Go!” and he used it many times through out the day today starting with the first waiting room where we signed in. “Go!” was always accompanied by him pointing to the last door we had walked through.

He had to drink a lot of barium to get a good contrast for the x-rays. Even though he was thirsty and hungry he was in no way interested in drinking the barium. We tried putting some in a paper coffee cup as he likes sampling the dregs of my soy chai latte whenever the opportunity presents itself. The method earned us perhaps 2 or 3 sips.

Can’t say I blame him for not wanting to drink liquid chalk. In all he drank less than 1/3 of what they wanted him to drink.

We gave him some salty potato chips in an attempt to make him thirsty.

They tried giving him a thinner solution mixed with Pedialite, but the taste was pretty bad. He drank less than 1/2 oz of that although he did want to clutch it in his hand all the while.

The x-ray process really frightened Eli. So that his bowels would work and move the barium through his digestive track, allowing for the x-rays of his small bowel, we were encouraged to take him to the cafeteria where he could relax.

He watched Baby Signing Time there for a while, but then he slipped and fell flat on his face, so that was the end of cafeteria time.

After recovering from his fall he enjoyed running down hospital corridors. I gotta say his little diapered bum was mighty cute peaking through the flapping oversized hospital gown as he ran about. :-)

This time of exploration gave him a bit of familiarity and confidence for the great escape he attempted right before the second round of x-rays. He didn’t get too far before he was caught by Daddy.

We tried distracting him with The Foot Book, but only made it through about 5 pages.

He did enjoy commandeering the remote for the waiting room t.v. The only other person waiting there was reading her Kindle so it wasn’t a problem.

From the first set of x-rays they were able to determine that Eli’s esophagus is working fine. So nothing in this test pointed to the reason why he seems to gag so easily.

Because he had taken in so little barium, and perhaps due to how much he wiggled as well, the image quality of the second set of x-rays was not so great. Eli was shrieking and more than ready to go home when the doctor began pointing to the image on the screen and saying something about cystic fibrosis. Wha..???

I don’t know why he was going there. Perhaps the test he had done is one commonly used to indicate that disease.  I couldn’t hear him or focus on what he was saying, so after asking a clarifying question and ending up even more confused I decided we’d just wait to speak with Eli’s pediatrician (or whoever is taking over for her maternity leave). I really don’t have any reason to think that there is something to worry about here. We have never had the sort of problems with Eli that would put CF on our radar.  And I’m choosing not to obsess. (“Did he SEE something on the x-ray?”) But still, it is quite disturbing to hear a doctor casually toss about the name of a terminal illness in a discussion about your child.

Not surprisingly, Eli fell asleep on the way home. Once home he continued sleeping for a record setting 5 hour nap!

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So since his first developmental screening, here is a run down of the information we have gathered.

According to the audiologist, Eli’s hearing seems to be normal for his age. They want to test him on a yearly basis due to our family history of hearing loss.

The ophthalmologist is fairly confident that Eli’s vision is normal. His left eye may appear to be misaligned when he is focusing due to immature facial features where the folds of eyelid skin cover more of the white of the eye than they will later when he has grown more. There is even a fancy word for it … pseudostrabismus. He wants to see Eli again in 4 months, just to be certain.

He certainly looks plenty verbal!

Since his screening a month ago not only has Eli gained some oral vocabulary, but his signing has expanded to about 50 words. The insurance is requiring a second opinion so he will be having a more extensive speech screening tomorrow with a different organization and an OT evaluation there on Monday. It will be interesting what the results to those screenings will be.

Completely aside from the therapies the insurance may or may not cover, the Regional Center is offering Eli group therapy from 9 – 11 a.m. on Tuesdays and Thursdays, as well as individual speech therapy for a hour after class on Tuesdays. Add to that whatever therapy the insurance offers, or if they deny the Regional Center will offer the additional therapy, it looks like we will be very busy.

The last issue we are dealing with is that Eli has now had 2 allergic reactions (hives) after exposure to peanuts. He will be skin tested again on January 27 to see if he does indeed have a peanut allergy. In the meantime his doctor gave us a prescription for the Epi-pen to have on hand.

I’ll post another update at some point down the road.

 

Thank you for your interest in our sweet boy!

Karen

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